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Category >> Autism

Apr 13
2008

Preparing a Child with Autism for a Trip

Posted by Brett in youtubeparentingholidaysautism
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Getting a child with autism ready for a big trip is essential to the trip's success, I think. We haven't ever really tried it yet. We're going to Disney World, and these kids couldn't be more excited. All that Gavin talks about now is Disney World. Every day, he thinks we are going to go there immediately. He understands that we have to take an airplane, but I think he assumes it's just across town. Gavin hasn't been on an plane since he was a baby, so this trip to Disney World will be a huge event in his life. He's never been on a roller coaster, so who knows whats going to happen. There is plenty of fun stuff to do there besides thrill rides, so I know it will be a great time even if the big rides are too scary.

The things I worry about with him are the loud noises and lack of room to move. Gavin is tirelessly energetic, and requires an outlet for that energy, especially when over stimulated. He likes to just hop and skip around when he's excited, and there's not a lot of room for that type of activity on a jet. We do regularly make trips to Raleigh and Greensboro to see family,which are 2 and 3 hour jaunts, but he's used to that routine. He knows what to expect: chicken nuggets at the halfway point and hugs and kisses when we get there. This is a totally new endeavor. We are talking long lines at security, possible delays, and a very loud take off. Not to mention the painful eardrum pressurization upon take off! How do you prepare a kid for that? If you've got a child with autism, you probably understand the apprehension we feel. Chernobyl type nuclear meltdowns are not a fun start to a vacation. Hopefully we can avoid that!

To prepare Gavin, YouTube has been a huge help. We've been watching videos of airplanes taking off, landing, the safety instructional performance and just views of the interior of 747's. He knows its going to be loud. I crank the volume on these videos for him. I'm thinking of getting him some headphones to wear so he can listen to his favorites (Blues Traveler or the Cure) on the way down. He loves music in the car, and I've tried those little earbuds that came with my iPod on him but he won't keep them in very long. Or if they fall out in the middle of his favorite song - not good. High meltdown potential. There are also a lot of great videos of roller coasters on YouTube, filmed from the rider's perspective. Gavin's eyes get really big when he watches those. I'm not sure if he's going to like it or not. He loves going down the big huge slides at Monkey Joes by himself, so maybe he can handle some of these. We will start slow, at the Tea Cups maybe, and gradually work our way up to Space Mountain and beyond.

Through her friends on the autism parenting discussion boards, Sara has found out that we can get a special pass for Gavin when we get to Disney World. It will allow him to skip the lines and just get right on the rides (with me, of course). That will be extra nice. Waiting in a line for 30 minutes is just not an option for a child with autism. I'm not sure if we need to take a note from his doctor or how it works, but that is the only way we'd be able to do a trip to Disney. I can get him to wait for some things, like an eggo waffle in the toaster, for example. I just tell him to count to 20 or 40 or 100, however long I think it'll take to cook. He quits his bellyaching and starts carefully counting. Standing in a line at Disney, he would have to count to about 6500. We've never ventured much past 1000, and that old trick would wear out quickly.

Yes, the waiting is the hardest part. Especially the waiting for the day we actually get on the plane and go! When we first told Gavin about the trip, he woke up the next morning and said "Now, Disneyworld. Yay!" We decided to print out a simple calendar with just the days left on it until the trip, with a little picture of an airplane on the last day. Every day he marks off a day with an X and counts the remaining boxes. Its pretty funny, on any day since we've started doing the calendar countdown, you can ask him how many days left until "Airplane to Disneyworld" and he can tell you. He thinks about it constantly! This is actually a great way to make him aware of the concept of time. This is going to be a huge experience for all of us. I'm sure I'll have plenty of topics to write about when we get back!








Mar 20
2008

Toddler Modeling

Posted by Brett in snugfitscontestautism

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My son is a model in a calendar! He's Mr. October! Sara entered him (Gavin 4yrs) into a contest for the National Autism Association annual calendar and he was picked! I just thought I'd use this little platform to brag a bit. We always knew he was a handsome devil, but wow. And now he's also on their advertisement for the big spring sale email. We had no idea they did that until it just popped in the inbox and whoot, there he is! The picture they used was one from 2 years ago when he was two.

I need to get more shots of him modeling our baby and toddler clothes before age starts taking its toll, right? He likes his black "Future Mac User" shirt quite a bit, so maybe I'll put that on him for the big Easter Egg hunt at the church today. Or maybe it should be the "Junk in the Trunk" shirt? That one probably wouldn't go over well with the older patrons. Well, they probably wouldn't get it, especially since Gavin has zero junk in the trunk. He doesn't have one yet, but I could make him one that says "You're Old" just for fun today. That would be a hoot.

We are planning on expanding our line of designs to more older kid stuff someday anyway. With one more baby on the way, our progression of in house models will grow concurrent with Sara's website. Of course, we welcome any of our customers photos to be entered into the modeling contest. Your baby could win a free Snugfit™ and gain the distinct celebrity of regularly appearing on our website! Check out the home page for more info.

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Mar 07
2008

Embarrassed

Posted by Brett in parentingemotionsautism

Gavin was embarrassed today! For the first time ever, I saw Gavin get red in the face and look very self conscious. He's nearly four (next week!) and he has Autism, so it is kind of a big deal to me. I feel like he's really healing when he shows tangible signs of a unique personality like that.

Here is what happened: We were at Fit for Fun, a cool little place downtown for toddlers and babies to hang out and play together. It's a great place. It's kind of a Saturday morning tradition for me and the boys to head downtown for a playdate at either Fit for Fun or Monkey Joe's. We were eating snacks at a toddler sized table and polishing our proficiency in barnyard animal sounds. All of a sudden, from behind Gavin came a little lad that recognized Gavin from school. "Hi Gavin!" he exclaimed. Gavin looked at him, completely caught off guard, then looked at me and in the same instant turned beet red. I was completely thunderstruck. Shyness! I couldn't help it, I just started roaring with laughter, elated to see this new show of his true character. I wanted to tell everybody there "HEY EVERYBODY! My son is EMBARRASSED! Can you believe it?" Of course, probably no one there would have grasped the depth of what I had seen, unless they too had a child stricken with Autism.

I don't go around introducing him as "Gavin, with Autism." So, a lot of people we encounter at the park and other places might not even see him as different. Yes, he's got some really odd behaviors, I guess. Maybe people do see him differently? I don't know. At any rate, I was pretty psyched when I saw that flash of individuality in him.

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